Welcome to the Brain Health Community Registry!
The Brain Health Community Registry is a network that connects adults and caregivers interested in brain health with community-based services and researchers who study aging, brain health, and caregiving for people with memory changes. We use the word registry to describe a group of people who are interested in having researchers send them different study opportunities that they might be eligible for.
The goal of the registry is to share information about research opportunities related to aging, brain health, and caregiving for people with memory changes and their caregivers, and to make participating in research more accessible.
Why is studying brain health important?
Understanding and protecting our brains is important. A range of diseases and events can impact our brain health including concussions, strokes, Parkinson’s, and dementia. Not only do these conditions impact millions of people, but they also impact families.
Did you know that…
- Changes in our brains due to Alzheimer’s disease are thought to begin up to 20 years before we notice any symptoms
- As many as 200 million people around the world have an intellectual disability. This is 1-3% of the global population. Intellectual disabilities are more common in low-income households and communities
Around 60,000 Americans get diagnosed with Parkinson’s Disease each year
Brain health is not just the absence of disease. Working towards improving brain health means providing opportunities for all individuals to feel content in their cognitive, emotional, psychological, and behavioral functioning.
The Brain Health Community Registry hopes to help get more people involved with brain health research, which is an important step for better helping the people most impacted by brain health changes and diseases.
Many communities encounter disparities in brain health, particularly as we age. Access to research is essential to understanding and ultimately addressing these disparities. The Brain Health Community registry was created with the hopes of connecting people to ongoing brain health research and providing them with resources to make participating in research easy and accessible to more people.
*Sources: Alzheimer’s Association, Center for Disease Control, World Health Organization, and Parkinson’s Foundation
Funding for this study is provided by the School of Nursing and the National Institutes of Health